Johanson-Blizzard Syndrome (JBS) is an extremely rare inherited disorder characterized by an unusually small nose that appears "beak shaped" due to absence (aplasia) or underdevelopment (hypoplasia) of the nostrils (nasal alae); abnormally small, malformed primary (deciduous) teeth and misshapen or absent secondary (permanent) teeth; and/or unusually sparse, dry, coarse scalp hair that tends to have a distinctive "upsweep" in the forehead area.
lunes, abril 13, 2009
Una pequeña familia Internacional
Montse, espero que Lucas esté creciendo y que esté estable de salud, te mando un abrazo en la distancia. Igual para ti Mary, que eres una tía muy atenta a la salud de Elio. Espero poder volver a contactarlas. Dios les bendiga y les cuide a todos.
Me encanto el video,los niños se ven felices y eso es maravilloso.Gracias Cynthia`por estar siempre pendiente del blog,pronto te enviare fotos actualizadas de Valen y Sofi.Hasta cada momento,te mando un fuerte abrazo y que Dios me las bendiga mucho!Nancy
Thank you for joining our blog "MADISONS" (Moms And Dads In Search Of Needed Support). I'm glad to know you're out there. Help me to figure out how I can join your blog as a follower, but in the meantime, it's comforting to know that there are other people who are giving their time to connect with families. marcymadisonsfoundation@gmail.com
2 comentarios:
Me encanto el video,los niños se ven felices y eso es maravilloso.Gracias Cynthia`por estar siempre pendiente del blog,pronto te enviare fotos actualizadas de Valen y Sofi.Hasta cada momento,te mando un fuerte abrazo y que Dios me las bendiga mucho!Nancy
Thank you for joining our blog "MADISONS" (Moms And Dads In Search Of Needed Support). I'm glad to know you're out there. Help me to figure out how I can join your blog as a follower, but in the meantime, it's comforting to know that there are other people who are giving their time to connect with families. marcymadisonsfoundation@gmail.com
Publicar un comentario